The 2010 film “Extraordinary Measures” depicts John and Aileen Crowley’s heroic efforts to find a cure for their two children who suffer from a rare and deadly genetic disorder. In one heart-wrenching scene, their oldest child experiences an exacerbation so bad that it brings her to the brink of death. With no treatment options remaining on the table, the Crowleys can do nothing but wait. Attempting to comfort them, a doctor tells them that they could try to look at their daughter’s seemingly imminent death as a blessing because their daughter would not need to suffer any more. As any parent can imagine, the proposal was less than satisfying to the Crowleys.
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